This week has been so crazy.. Baby had an FPIES reaction.. her very first since our actual diagnosis and she hasn’t had one in months. We we’re doing extremely well with food trials and boom it hit us.. I can’t say I knew it wouldn’t happen, but was I prepared? Emotionally no – however I went into mommy mode and kept myself together. She was throwing up, screaming, crying, and just in absolute misery. What can I do? There’s nothing that can be done aside from taking her to the ER to have fluids to prevent dehydration. Any liquid even water would irritate her and cause her more pain. So we went to the ER. Vomitting started around 10:30 – 11pm on September 1st and then she stopped and actually fell asleep. I nursed her just a short time around 3 and thought it would be okay since ingestion was at 7:30. Poor baby threw up and was miserable so we ended up going into get her fluids right away. She was sick on the way to the hospital and we just knew that was all we could do.
She had a bit of a fever – also teething so that could be another reason. They took her blood but weren’t able to get much due to the dehydration and pricked her again after she was hydrated with the IV. 🙁
My baby didn’t cry one bit. I explained to her that mommy and daddy were there and we’re helping her. We love her and that this was all going to go away. It’s almost like she completely understood. She was such a big girl. Now we’re sticking to safe foods for 2 weeks at least. Then we’re going to trial a yogurt that we think was safe before her diagnosis. I was so glad that when we came home she was so happy to just snuggle, nurse, and fall fast asleep – no more puking..
FPIES.. you stink 🙁
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Poor baby! I hope she feels better soon.
Even when she is so sick she is adorable. Poor little princess! 🙁
Oh nooooo, sweet little thing!!!!
Wow, sounds like you had an eventful couple of days. Glad she’s feeling much better.
Ah, bless her little heart. Hope she’s feeling much better!
Awww poor baby girl & big hugs to you hun. I hope she is doing better now and has an uneventful two weeks.
I’m so sorry your sweet little baby has to go through this. I hope you are both feeling better.
Oh Courtney, I’m so sorry. I just hope your sharing these trials helps you connect with other families that have children with FPIES as well. I hope Baby M doesn’t have another episode for a long long time.
Poor little thing! Hugs, Mama.
Oh my. I hope she is feeling much better by now.
Oh Im Sooo sorry!! Both of my babies have had to spend nights (at least 3) in the hospital for some serious reasons and it is just heartbreaking!!!
Thinking, praying, sending postive thoughts your way 😉
Oh my gosh, what a little angel! This makes me so sad 🙁
Poor baby and poor momma!! So sorry you all have to go through this.
Poor baby. I can’t imagine how scary that is – trying a new food and not being sure how she will react to it. I’m glad she’s doing better.
Oh man, what a roller coaster. You and Sweet Baby are such champs.
Awwww, poor girly! I hope she’s doing much better. I honestly never heard of FPIES, but that is terrible that she is going through this. 🙁
Oh no! I’m sending Hugs for you (well, and her too)
Poor sweet girl!! I’m glad she’s doing better and just know that you are doing a great job mom and dad.
Aww poor thing, sounds like she handled it like a tropper though as did her mama! So sorry she has to go through it. Hopefully they will be few and far between.
Poor sweet baby. I am so sorry you all are dealing with this, but you are doing a fantastic job of giving her exactly what she needs.
Gosh I know the exact feeling. How did they do with you telling them she has FPIES and her standard of treatment for it? I’m sorry mama!
Poor little sweetheart. I’m glad she is doing better now. I’m curious. What was the offending food anyway?
I’m so sorry! I can only imagine how scary that must be.
Poor thing!!
aww poor girl. hope she is feeling better
Oh no, I am so sorry!
Poor little thing. That has to be so scary for you.
Poor thing. *hugs mama*
breaks my heart poor little sweet heart I do hope she is feeling better now
Hugs mama. Seeing our babies in pain and hurting and being unable to make it go away is one of the hardest parts of being a mom. I’m glad she’s okay now.