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You are here: Home / Parenting / FPIES / The verdict is in…

The verdict is in…

Published June 6, 2013 Last Updated October 12, 2018 By Courtney 30 Comments

This post may contain affiliate links. Please see my disclosure policy for more information.
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As you know we went to CHOP yesterday to see if she has FPIES. (Food Protein Induced Entercolitis Syndrome)  Many people have told me to not assume, not to look into things without a doctor’s advice, and never trust google.. Well, if it wasn’t for all of those things above I would have most likely spent months maybe years trying to figure out what was causing issues for my daughter.  FPIES is NOT well known.  It’s extremely rare and almost all doctors and even specialists are unaware of it.  To think I was lucky enough to be able to find out before we had to go through all those routes of trying to figure out what is wrong – I am feeling blessed.

So very blessed to have this Sweet Baby in my life.   Blessed that it’s not life threatening.  Blessed that it does go away in time.  Blessed that we’re so close to the best doctors for the allergy.  So, very, blessed.

Now we start trialing foods that we think are safe.. Things she’s tried and not thrown up from.  Our journey is just beginning.. it may have a few bumps here and there but we are in the best situation – we have a diagnosis.  That’s the best place to be.  I am scared of seeing her react to food again.. I admit it.. thankfully we have wonderful doctors who are literally holding our hand through the way.  We can either trial new foods on our own and risk running to the ER or trial in the hospital with our doctors.  We just started banana since we believe that is her safest food and so far so good.  So, very, good.

 

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Posted in: FPIES Sweet Baby

About Courtney

Family, Food, and Photography are Courtney's passions and you'll see all of that on this blog. She married Chris in summer of 2008 and they had Sweet Baby summer of 2012. Now sweet baby has grown into quite the Mini Chef and has her own series called Mini Chef Mondays! Find recipes, product finds, and more on our blog!

Comments

  1. Whitney says

    June 6, 2013 at 5:48 pm

    Your mama instinct was right on! So glad you have a diagnosis and such a great doctors.

    Reply
  2. Lisa Noel says

    June 6, 2013 at 5:54 pm

    MAMA ALWAYS KNOWS BEST.

    Reply
    • Lisa says

      June 7, 2013 at 3:14 am

      What Lisa said!

  3. Savy Mommy says

    June 6, 2013 at 5:55 pm

    Thinking of you and sweet baby girl!

    Reply
  4. Nichol says

    June 6, 2013 at 6:12 pm

    Mom’s always know when something is wrong, and so happy you got a diagnosis. You will get through this even with the trials. Glad bananas are going well!

    Reply
  5. TAMMY says

    June 6, 2013 at 6:46 pm

    So so happy that you can breathe a little easier now since you now have an official diagnoses. You’re strong Mama, you’ll get through this 🙂

    Reply
  6. Shannon says

    June 6, 2013 at 5:47 pm

    So glad you found out and many prayers for her. She is beautiful. I love the photos. My son was diagnosed with pyloric stenosis at four weeks of age. I had never heard of it, but googled his symptoms and was convinced he had it and he did! Thank God I was persistent! It is fatal if not treated, but if treated, they are totally fine after the surgery.

    Reply
  7. Maria says

    June 6, 2013 at 10:08 pm

    *hugs* my son has FPIES as well but thankfully has only one trigger, sweet potato!

    Reply
  8. Maryann says

    June 6, 2013 at 6:11 pm

    glad you figured it out and that she will grow out of it.

    Reply
  9. Donna says

    June 7, 2013 at 12:00 am

    I’m so happy you trusted your instincts, and that you got a quick diagnosis. You guys are in my thoughts and prayers.

    Reply
  10. LyndaS says

    June 7, 2013 at 12:11 am

    I am glad that it is not life-threatening. She’s adorable.

    Reply
  11. Robin {Mom Foodie} says

    June 7, 2013 at 1:41 am

    Thank goodness you found out about this early. She looks like a very healthy child, and with your watchful eye and the help of these doctors, I’m sure she will continue to be.

    Reply
  12. Kathleen says

    June 7, 2013 at 1:53 am

    I am so glad you were able to get the answers you need to help her and hopefully you can start finding some safe foods for her tummy!

    Reply
  13. Charis's Mum says

    June 7, 2013 at 4:24 am

    So glad you found out what’s wrong. Does your daughter have many triggers? There’s another blogger {Maria at Change Diapers}; if I remember correctly, her son has it.

    Reply
  14. Theresa says

    June 7, 2013 at 5:59 am

    Moms always know best! Good job mama.

    Reply
  15. Leilani says

    June 7, 2013 at 6:32 am

    So glad you took the initiative and did your research. Keeping you and your sweet baby girl in my prayers.

    Reply
  16. Emily says

    June 7, 2013 at 7:11 am

    You are such a great mama! those instincts aren’t always easy to trust, especially when people tell you not to! Glad you followed through with it.

    Reply
  17. Colleen (Shibley Smiles) says

    June 7, 2013 at 3:29 am

    So glad you found out early and good job mama.

    Reply
  18. Elaine says

    June 7, 2013 at 10:34 am

    What happy news! God is so good! May He continue to bless your journey & guide the minds, hands & hearts of the hospital staff as they treat Sweet Baby! Good luck on this trial & error period.

    Reply
  19. tiff snedaker says

    June 7, 2013 at 4:57 pm

    It’s always good to trust your mommy instincts. I’m so glad it’s something that she will eventually grow out of.

    Reply
  20. The Rebel Chick says

    June 7, 2013 at 5:02 pm

    Oh wow! I am happy to hear that it’s not something more serious, especially since she can outgrow it!

    Reply
  21. HilLesha says

    June 7, 2013 at 5:36 pm

    I honestly never heard of this, but I’m glad you trusted your instincts and got it checked out.

    Reply
  22. Anne - Mommy Has to Work says

    June 7, 2013 at 6:54 pm

    So happy you found your answers!!

    Reply
  23. Rachel @ Following In My Shoes says

    June 8, 2013 at 4:57 am

    Precious baby — what a relief to have a diagnosis and a direction forward. Big hugs, Mama.

    Reply
  24. Shell Feis says

    June 8, 2013 at 8:54 am

    I’m so glad you have a diagnosis! Not knowing what’s wrong is so scary.

    Reply
  25. Lolo @ Crazy About My Baybah says

    June 8, 2013 at 6:13 am

    So glad that you got a diagnosis and now you can find out what works for her.

    Reply
  26. nicóle says

    June 8, 2013 at 10:13 pm

    So glad it wasn’t something more serious and that she can out grow it!!! xxooo Whew!

    Reply
  27. Toni Patton says

    June 9, 2013 at 9:02 pm

    I am so glad you got an answer. I hope she can tolerate more as she gets older.

    Reply
  28. Kelly @ A Girl Worth Saving says

    June 10, 2013 at 3:52 am

    I’m so glad that you have some answers and that the professionals that can help you with this are close.

    Reply
  29. Natasha says

    August 22, 2013 at 5:28 pm

    🙂 So glad you know now and you are so positive 🙂

    Reply

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