As you know we went to CHOP yesterday to see if she has FPIES. (Food Protein Induced Entercolitis Syndrome) Many people have told me to not assume, not to look into things without a doctor’s advice, and never trust google.. Well, if it wasn’t for all of those things above I would have most likely spent months maybe years trying to figure out what was causing issues for my daughter. FPIES is NOT well known. It’s extremely rare and almost all doctors and even specialists are unaware of it. To think I was lucky enough to be able to find out before we had to go through all those routes of trying to figure out what is wrong – I am feeling blessed.
So very blessed to have this Sweet Baby in my life. Blessed that it’s not life threatening. Blessed that it does go away in time. Blessed that we’re so close to the best doctors for the allergy. So, very, blessed.