As you know we went to CHOP yesterday to see if she has FPIES. (Food Protein Induced Entercolitis Syndrome) Many people have told me to not assume, not to look into things without a doctor’s advice, and never trust google.. Well, if it wasn’t for all of those things above I would have most likely spent months maybe years trying to figure out what was causing issues for my daughter. FPIES is NOT well known. It’s extremely rare and almost all doctors and even specialists are unaware of it. To think I was lucky enough to be able to find out before we had to go through all those routes of trying to figure out what is wrong – I am feeling blessed.
So very blessed to have this Sweet Baby in my life. Blessed that it’s not life threatening. Blessed that it does go away in time. Blessed that we’re so close to the best doctors for the allergy. So, very, blessed.
Whitney says
June 6, 2013 at 5:48 pmYour mama instinct was right on! So glad you have a diagnosis and such a great doctors.
Lisa Noel says
June 6, 2013 at 5:54 pmMAMA ALWAYS KNOWS BEST.
Lisa says
June 7, 2013 at 3:14 amWhat Lisa said!
Savy Mommy says
June 6, 2013 at 5:55 pmThinking of you and sweet baby girl!
Nichol says
June 6, 2013 at 6:12 pmMom’s always know when something is wrong, and so happy you got a diagnosis. You will get through this even with the trials. Glad bananas are going well!
TAMMY says
June 6, 2013 at 6:46 pmSo so happy that you can breathe a little easier now since you now have an official diagnoses. You’re strong Mama, you’ll get through this 🙂
Shannon says
June 6, 2013 at 5:47 pmSo glad you found out and many prayers for her. She is beautiful. I love the photos. My son was diagnosed with pyloric stenosis at four weeks of age. I had never heard of it, but googled his symptoms and was convinced he had it and he did! Thank God I was persistent! It is fatal if not treated, but if treated, they are totally fine after the surgery.
Maria says
June 6, 2013 at 10:08 pm*hugs* my son has FPIES as well but thankfully has only one trigger, sweet potato!
Maryann says
June 6, 2013 at 6:11 pmglad you figured it out and that she will grow out of it.
Donna says
June 7, 2013 at 12:00 amI’m so happy you trusted your instincts, and that you got a quick diagnosis. You guys are in my thoughts and prayers.
LyndaS says
June 7, 2013 at 12:11 amI am glad that it is not life-threatening. She’s adorable.
Robin {Mom Foodie} says
June 7, 2013 at 1:41 amThank goodness you found out about this early. She looks like a very healthy child, and with your watchful eye and the help of these doctors, I’m sure she will continue to be.
Kathleen says
June 7, 2013 at 1:53 amI am so glad you were able to get the answers you need to help her and hopefully you can start finding some safe foods for her tummy!
Charis's Mum says
June 7, 2013 at 4:24 amSo glad you found out what’s wrong. Does your daughter have many triggers? There’s another blogger {Maria at Change Diapers}; if I remember correctly, her son has it.
Theresa says
June 7, 2013 at 5:59 amMoms always know best! Good job mama.
Leilani says
June 7, 2013 at 6:32 amSo glad you took the initiative and did your research. Keeping you and your sweet baby girl in my prayers.
Emily says
June 7, 2013 at 7:11 amYou are such a great mama! those instincts aren’t always easy to trust, especially when people tell you not to! Glad you followed through with it.
Colleen (Shibley Smiles) says
June 7, 2013 at 3:29 amSo glad you found out early and good job mama.
Elaine says
June 7, 2013 at 10:34 amWhat happy news! God is so good! May He continue to bless your journey & guide the minds, hands & hearts of the hospital staff as they treat Sweet Baby! Good luck on this trial & error period.
tiff snedaker says
June 7, 2013 at 4:57 pmIt’s always good to trust your mommy instincts. I’m so glad it’s something that she will eventually grow out of.
The Rebel Chick says
June 7, 2013 at 5:02 pmOh wow! I am happy to hear that it’s not something more serious, especially since she can outgrow it!
HilLesha says
June 7, 2013 at 5:36 pmI honestly never heard of this, but I’m glad you trusted your instincts and got it checked out.
Anne - Mommy Has to Work says
June 7, 2013 at 6:54 pmSo happy you found your answers!!
Rachel @ Following In My Shoes says
June 8, 2013 at 4:57 amPrecious baby — what a relief to have a diagnosis and a direction forward. Big hugs, Mama.
Shell Feis says
June 8, 2013 at 8:54 amI’m so glad you have a diagnosis! Not knowing what’s wrong is so scary.
Lolo @ Crazy About My Baybah says
June 8, 2013 at 6:13 amSo glad that you got a diagnosis and now you can find out what works for her.
nicóle says
June 8, 2013 at 10:13 pmSo glad it wasn’t something more serious and that she can out grow it!!! xxooo Whew!
Toni Patton says
June 9, 2013 at 9:02 pmI am so glad you got an answer. I hope she can tolerate more as she gets older.
Kelly @ A Girl Worth Saving says
June 10, 2013 at 3:52 amI’m so glad that you have some answers and that the professionals that can help you with this are close.
Natasha says
August 22, 2013 at 5:28 pm🙂 So glad you know now and you are so positive 🙂