Since Sweet Baby’s FPIES diagnosis I’ve tried to find out anything and everything I can about FPIES. (new here? no worries! read our post – what is FPIES) I would like to say I know all there is to know, but then I’d be lying. There’s so much still unknown about FPIES since more research needs to be done and every single case is different. Our situation could be better or worse than the next. One thing that doesn’t change is how we approach it in certain situations, or how much we let it control our lives.
Help spread FPIES Awareness by pinning and sharing the above image. With your help we can help those without a diagnosis!
Food allergies are serious and definitely need to be taken that way, but being together is the best medicine and we need to remember how to enjoy those moments. Whether big or small; being together during the holiday season is what is most important. I am honored to guest post over on the IAFFPE (International Association for Food Protein Enterocolitis) Blog! I share about how we are planning our first Holiday since diagnosis plus some helpful tips! I’m thankful we got an early diagnosis. I was very determined and Sweet Baby only suffered with horrible symptoms for 2 months – some other families aren’t so lucky. Google was actually the reason we got our diagosis, so googling your symptoms can be helpful with the help of your doctor after! I feel so blessed for each and every food trial pass and hope that we keep passing! Each trial is scary, but we’re not alone in this.
May we all be thankful for the daily blessings we receive!
Be thankful for what you have; you’ll end up having more.
If you concentrate on what you don’t have, you will never, ever have enough.
Oprah Winfrey
Tiff @ Babes and Kids says
November 27, 2013 at 11:04 pmYou are such an awesome advocate for your daughter. Love the photo of you two!
Robin Gagnon says
November 28, 2013 at 12:15 amDespite her limited diet she sure seems to be one happy little kid 🙂
Samantha H says
November 28, 2013 at 12:38 amI have a “meat intolerance/allergy” so anyone who tries to bring allergy/intolerance to light i am 100% behind great job!
Jennifer @TheRebelChick says
November 28, 2013 at 11:24 amWhat a fantastic photo of you two! Happy Thanksgiving!
Liz @ A Nut in a Nutshell says
November 28, 2013 at 7:45 pmI love the awareness you’re spreading. You’re a wonderful spokesperson and champion for FPIES. Your daughter is precious!
Ani W says
November 29, 2013 at 9:36 amFood allergies are very serious. As a mom to an allergy free kid I cant even begin to imagine the stress something like a food allergy brings. The potential reaction every time they are anywhere. FPIES is something I had never heard about. Thanks for bringing attention to it.
Julie says
November 29, 2013 at 12:01 pmI can’t imagine the struggle you have some days, trying to find foods that won’t aggravate your daughter’s condition. Kudos to you for learning all you can and being an advocate in the community!
Lisa - Between the Kids says
November 29, 2013 at 1:24 pmSuch a sweet picture!!! 🙂 It’s awesome that you’re sharing your research!!
Bohomoth says
November 29, 2013 at 5:41 pm‘Totally sympathise. My sister has a severe nut allergy and has to carry a special injection pen with her everywhere just in case. you have to be so careful, but glad you guys are on top of it. Happy Holidays!
Toni says
November 29, 2013 at 7:20 pmShe is adorable. Thanks for spreading awareness.
Lori Leal says
November 29, 2013 at 7:57 pmLove this post! My son and I both have many food allergies, and we still eat delicious foods and we don’t miss what we can’t have 🙂 Thanks for sharing!!
Colleen says
November 29, 2013 at 9:31 pmGreat photo of you girls! I love that cute too it is so true. I have taught my husband over the years that he has to be happy with what he has even if he wants to strive for more.
Angela says
November 29, 2013 at 9:37 pmI love that you are so proactive in dealing with FPIES. It sounds like a tricky condition to get under control but you are doing great!
Stefanie says
November 29, 2013 at 10:34 pmI can’t imagine how hard it is to have food allergies around the holidays. Your a great mom for bringing awareness.
Stefanie says
November 29, 2013 at 10:35 pmThat should be you’re.
Shell Feis says
November 30, 2013 at 5:25 amYou have such a beautiful little pumpkin! You’re right, the holidays totally aren’t about the food but rather being together.
Mellisa says
November 30, 2013 at 10:46 amYou guys are just too cute! It’s awesome that you are spreading awareness so that other people can be informed.
Stacey Roberson says
November 30, 2013 at 5:18 pmFood allergies are definitely something to be aware about. Great thing you caught this early in your little girl. My daughter suffers from food allergies, as well. And we were fortunate to see this early in her development.
daniel hargrove says
November 30, 2013 at 10:37 pmtoo cute!
Theresa says
November 30, 2013 at 11:19 pmYou are such a good mama to spread awareness about this.
Donna says
December 1, 2013 at 12:18 amI love how you are such a great advocate for your daughter. Great pic! And, love that quote!
Kelsey Apley says
December 1, 2013 at 10:36 amWhat you said at the very end is so very true!!! Life could always be so much worse and we need to look and see what is important right in front of us!!
Leilani says
December 1, 2013 at 1:07 pmWhat a sweet picture of the two of you!
Barnolds Barnes says
December 1, 2013 at 6:16 pmGlad you’re keeping the word out about FPIES with continuing posts.
Mariaelena Dominguez says
December 4, 2013 at 2:51 amI had never heard of this before, I learned something new today. Must be hard. She’s adorable btw!