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You are here: Home / Parenting / FPIES / Feeling Helpless

Feeling Helpless

Published May 14, 2013 Last Updated October 12, 2018 By Courtney 27 Comments

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Just one of the worst feelings in the world that I have felt is feeling helpless.  That is how I felt all day today.  This morning started out like any other.. Sweet Baby and I woke up and snuggled right before breakfast.  I made myself oatmeal and decided to try giving her oatmeal again since she’s refused it in the past.  I mixed a extremely small amount of organic oatmeal into her banana and yogurt which she usually eats every morning. She really enjoyed it – she even picked up the spoon and took a few bites with it instead of just using her fingers.  We love sensory eating.. if you follow us on instagram I’m sure you’ve seen our pictures 🙂

Once she was finished I cleaned her up and we played with her toys.  About 3 hours go by and she gets fussy – time for num nums! (breastmilk) She’s even signing more and started clapping her hands.. oh how I love her!  After she was full she fell asleep in my arms.. then out of nowhere violently threw up not once, not twice, but three times within 20 minutes..and it doesn’t stop she was to the point of throwing up bile.  My poor Sweet Baby!
This wasn’t the first time.. she has the same exact reaction to chicken and soy.   The first time it happened we thought it was some sort of stomach bug.. but then we tried chicken again and the same reaction.  Also with Soy.  So like any other person I turned to google.. Then I found something called FPIES: Food Protein Induced Enterocolitis Syndrome.
 She has all the symptoms of this.. and so I called her doctor and he also thinks it’s highly possibly.. while extremely rare he said from what I told him it could be it.  Unfortunately he’s not familiar with it at all so we’ll be going to an allergist and possibly a pediatric gastroenterologist.
Thankfully she hasn’t eaten enough of the trigger food to have a really bad reaction.. but I don’t want to know how bad that could actually be.  She’s had a nibble here and a nibble there.  There was maybe a drop of oatmeal in her yogurt that she had about 3 bites (more like licks) total.
Now she’s fine aside from being tired.  I have noticed it can go on and on if we put anything in her stomach so I just want until she has a bowl movement.. she has a bowl movement about 2 hours after throwing up and then she’s done vomiting and also extremely hungry.. we start off slow letting her stomach ease into getting full.  All along I thought this is normal.. babies throw up.  Then today that mother’s instinct came out and I just knew that this wasn’t what I thought to be normal, that this is more than just some texture issue since it’s 3 hours after eating, and most importantly that I have to be the voice for my baby.  She hurts.. I hurt.   Now we start the search for answers.. FPIES may not be it, but I won’t stop until I do find out what it is.

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Posted in: FPIES Sweet Baby

About Courtney

Family, Food, and Photography are Courtney's passions and you'll see all of that on this blog. She married Chris in summer of 2008 and they had Sweet Baby summer of 2012. Now sweet baby has grown into quite the Mini Chef and has her own series called Mini Chef Mondays! Find recipes, product finds, and more on our blog!

Comments

  1. Nichol says

    May 14, 2013 at 10:39 am

    Awww I hope you figure out what is causing it. I’ve never heard of FPIES. Your mother’s instict is right. Babies do not throw up like that out of nowhere. Something is causing. You and the docs will figure it out. Feel better sweet girl.

    Reply
  2. Vanessa says

    May 14, 2013 at 1:58 pm

    I hope you figure it out and she get’s better quick. So sorry.

    Reply
  3. LyndaS says

    May 14, 2013 at 2:04 pm

    Bless her (and your) heart!

    Reply
  4. Penelope says

    May 14, 2013 at 2:15 pm

    I know how you feel mama ((hugs))

    Reply
  5. Simply Being Mommy says

    May 14, 2013 at 3:21 pm

    I’m sorry hun. I hope you figure out what is causing it.

    Reply
  6. TAMMY says

    May 14, 2013 at 6:14 pm

    So scary – I hope it’s something that you can work with and/or around for her food needs.

    Reply
  7. tiff snedaker says

    May 14, 2013 at 8:03 pm

    So sad that she’s having those reactions. I’ve never heard of FPIES, but it definitely sounds like you’ve been doing your research. You are her biggest advocate. ((HUGS))

    Reply
  8. Viv Sluys says

    May 15, 2013 at 4:39 am

    Even if it (hopefully) turns out to be nothing it’s wise to get it checked out. Go with those mama instincts!!

    Reply
  9. ReInventing Lolli says

    May 15, 2013 at 5:06 am

    I really hope that you can find out what it is! That is really rough!

    Reply
  10. Emily says

    May 15, 2013 at 5:12 am

    I’m so sorry you are dealing with this! Poor baby. I have a feeling you will be grateful you have breastfeeding to fall back on as you figure out what it is that is causing this! Hang in mama – YOU ARE DOING GREAT!

    Reply
  11. Lolo @ Crazy About My Baybah says

    May 15, 2013 at 2:23 am

    It hurts more when your little one is suffering. I hope you figure out what is causing the problem.

    Reply
  12. That Bald Chick says

    May 15, 2013 at 8:46 am

    Not knowing how to help our children is one of the worst feelings in the world. Hugs, Mama. Prayers for you and M.

    Reply
  13. Jennifer @ Mom Spotted says

    May 15, 2013 at 1:44 pm

    🙁 Hugs mama! Watchng our baby’s hurt is one of the hardest parts of motherhood! I hope you find some answers soon!

    Reply
  14. Anne - Mommy Has to Work says

    May 15, 2013 at 4:59 pm

    Poor thing….

    Reply
  15. Maryann says

    May 15, 2013 at 4:37 pm

    I understand the struggles. We go through a lot trying to figure out what was up with our son.

    Reply
  16. Jennifer Quirky Momma says

    May 16, 2013 at 9:07 pm

    Poor baby girl and poor momma. I hope everything is okay now.

    Reply
  17. Jenn@Sweet T Makes Three says

    May 16, 2013 at 11:39 pm

    That’s frustrating, Mama! I’m glad your pediatrician is listening to you.

    Reply
  18. Theresa says

    May 17, 2013 at 4:33 am

    I am so sorry. I hope everything turns out ok.

    Reply
  19. TerriAnn @ Cookies and Clogs says

    May 17, 2013 at 6:41 am

    Poor thing – she must be so exhausted. I hope you find out for sure what it is and can work from there!

    Reply
  20. Kelly @ A Girl Worth Saving says

    May 17, 2013 at 10:09 pm

    Oh no, I hope that you find what triggers this in her without her having to go through that.

    Reply
  21. Elaina (A Time Out for Mommy) says

    May 18, 2013 at 2:51 am

    How frustrating! I hope it’s nothing serious!

    Reply
  22. Kathleen says

    May 18, 2013 at 11:49 pm

    Poor baby, I hope you are able to find out what it is soon.

    Reply
  23. Robin {Mom Foodie} says

    May 19, 2013 at 12:22 pm

    I have never heard of this allergy before, but agree you should have her seen soon. That isn’t just typical baby throwing up.

    Reply
  24. Rachel @ Following In My Shoes says

    May 20, 2013 at 2:28 am

    Oh, honey — how scary … and I agree with Robin. Hopefully your Allergist appointment is soon.

    Reply
  25. Stefani @ MommyEnterprises.com says

    May 20, 2013 at 4:55 am

    It is such a bummer when the little ones are not feeling well.

    Reply
  26. Ty Watson says

    May 20, 2013 at 5:10 am

    Poor baby!

    Reply
  27. Leilani says

    May 20, 2013 at 5:42 am

    Praying for you and your baby!

    Reply

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